We are a Latin American transnational NGO of carrier parents affected by Dravet Syndrome (Infant Myoclonic Epileptic Encephalopathy), which is a rare, low-prevalence disease that manifests itself in one birth in 20,000, which has no cure and in the face of that we have united to reach new advances in precision medicine research that is a pioneer worldwide and improving the quality of life of people affected by this type of rare disease.
We provide legal and psychosocial support to families with carriers of Dravet Syndrome affected by the SCN1A GEN, in order to improve their quality of life.
Our main mission is to manage resources and social support to carry out research in precision medicine and new drugs in search of a cure for Dravet Syndrome.
DRAVET LATAM by 2027 will be recognized at the Latin American level for being the foundation with the most research in treatments that lead to a cure for Dravet Syndrome patients.